Changes Again!!!

So what a difference 24hrs can make. I got a call from our cardiologist and she now feels like we need to do one more test before the surgery just to check on Jacks obstructive sleep apnea that he had back in October. Now because of the apnea we did the tonsil and adenoid surgery, so now we need to see how much improvement was made by doing it. Here is the hitch, she wanted us to get in and do the test before Monday-surgery day-, now she told us this Wednesday night, and on Thursday the doctor that we need to go to could not get us in until Tuesday, so we waited to see what was next. Dr. Judd our cardiologist called Thursday afternoon and felt the best route to go was to postpone the surgery until we get the results from this new test.

The reasoning is this: If we find that Jacks apnea has cleared up completely then we would go forward with the open-heart surgery and close the 2 holes in his heart. If the apnea is still there, then there is an issue with the breathing tube that he has to have in during surgery, and having the tube in him for so long will cause some complications with trying to remove it after if there is still obstructive apnea. In this case what we will do is a different procedure where they go in through a vein in his groin up to his heart to close off 1 of the 2 holes (the PDA) that is accessible from the outside of the heart. This procedure is wayyyyy less evasive and would not require the craziness of open heart. They will then be able to test the pressure levels in his lungs - which bottom line is what we are trying to fix- and by doing that should see that they are down and the issue has been fixed.
If the pressure is still there we will have to go through with the open heart and fix the other hole - the VDA- but by only having to fix 1 hole even with the apnea it should be a bit easier to work with the breathing tube as the surgery would not be as long as if we needed to close the 2 holes. Its all VERY confusing and we are still trying to grasp it all, but the thought of not having to cut through my sons chest is a very calming thought.... Although the thought that we would maybe still have to end up doing it is frustrating as well, trust me I go back and forth on how I feel about it, but at least giving this other option a try first, with the chance of it fixing his pressure in his lungs, I guess is worth it- I guess.....

I do have a MAJOR issue with this all coming up now -3 days before the surgery- and not 3 weeks ago. We have had to make crazy plans to have everything covered in all areas of our lives and just the emotional ride we have been on was just exhausting. So from that side I am really frustrated, instead of telling us he needed open heart surgery, we should have been told this other test was needed and then go into what our options were pending those results.. ya know???

So there is the update very long and confusing I'm sure, but again we are now waiting for our appointment on Tuesday and we will go from there. I'm a little to tired to be way ticked off but trust me that is how I feel. I can't thank you all enough for your prayers and thoughts, we are praying in hope that his sleep apnea improved.. the chances of it clearing completely after his tonsil and adenoid surgery were only 5-10%, so we are just hoping with all we have that he has moved out of the severe range to the mild- that would be good news..... News that we could be happy about, at least until we find what mountain we will be facing next in this journey to fix our little mans lungs and heart.....