1 week ago
Saturday, July 17, 2010
The News.....
So he made it!! We actually were finally able to get him into surgery...... I was still holding my breath as we were driving up to the hospital, I was thinking what if they turn us back? But we got there, went in and were actually able to go with him into the room while he went through the final prep of falling asleep. It for whatever reason put my heart at ease to see where he would be at and who was going to be there with him, now what didn't put my heart at ease was the page we got after only 1hr and 30min of being in there when we were told the procedure would take about 3hrs... so we went down and the doctor took us into his office to go over what they found. the hole they went into repair was now coiled off and it showed that no further blood was going through it so that was good news. We were also told that in a lot of cases these heart issues cause the arteries going into the heart to be soft, but all of Jacks were very strong and healthy. The bad news, the news we so didn't' want to hear was that the other hole in his heart, the VSD was actually bigger than what the ECHO suggested it was, and therefore open heart surgery will be our next step. He showed us a view of the heart pumping and it showed just how much more blood is going into the right side of his heart because of this hole. from what was measured it is about double the amount of blood than what is in the other side. The news was very discouraging, frustrating and heart breaking to hear. I just wanted to see Jack right then but he was in the PICU recovering. After about an hour or two he was transferred to the area where we could be with him. When we saw him he was just sleeping so peacefully, and he just looked so comfortable. I looked at his chest and thought of what was next and broke down, but the conclusion I have come to is this... the doctor said that going in and closing this hole with be a cure... that's right a cure, Jacks issues with pressure in his lungs and heart will be cured, he also said this is a surgery that is a get in and out, it is just this one hole that they will patch or sew up and then they are out of there... so no reconstruction or anything like that, so if there is any light in this tunnel that is it.... Thinking of everything else just puts me into panic mode so I focus on that... the cure for my little boys heart issues.... Jack woke up and was just such a trooper. He was even happy, but after a while he started getting tired again and got a little grouchy, but I stress the word little... you would think after everything he would be more than grouchy but he wasn't, and really all it took was getting him some food and he was good. I love that boy more than I can say and he just amazes me every day. I don't know for sure how everything is going to go, and I don't know why we have to keep getting these setbacks but I do know that I would do anything for our little man, and I pray we are doing what we should be...
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I am so grateful that the surgery went well, and that they have figured out the cure for the next procedure. He is such a tough little guy!!! Hang in there!!! I've been thinking about you all weekend. Why don't you go ahead and take the week off........
ReplyDeleteI am so glad that everthing with the surgery went well and am sad that you have to do the open heart surgery. Our hearts and prayers are with you.
ReplyDeleteYou're just stepping your way into it all. One thing down now. Keep your chin up!
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