Thursday, February 24, 2011

That Moment

So a lot has happened since the last post. Elle is with one less tooth. Yes she finally lost that loose tooth, at the beginning of February, and although she felt like her tooth was worth $20, the tooth fairy thought otherwise..... That same night she lost her first tooth, we found out that she now has a second one that is loose...both on the bottom row, right next to each other, so it should be pretty funny when this one comes out because she already has some issues with saying some "s" words, and now add one more open space right next to the space she already has and you are in for a good laugh.... Marley, our almost 9month old got her first 2 teeth at the same time, with more on the way, which makes sleeping hard as she is just not happy. She is now fully mobile, via the army crawl, but man if she wants to get somewhere watch out, she is there fast, and in stealth mode. she is very quiet. She also has developed a love of wanting whatever her brother wants. and when she puts her hand on the toy Jack is playing with you see this angry reaction for just a split second, but then he smiles and gives in. Cute little boy, with a head full of hair.... We haven't cut his hair since July, and to say he has a lot of hair is an understatement, we call him Jack Beiber. Speaking of which.... I have heard many stories of friends who have had these moments when someone is talking to them and for whatever reason this person will say something so off base about their child or children with DS in general it seriously has made people literally speechless. Every time I hear a new story in my head I just come up right away with what I would say, and how I would react if that happened, but at the same time understand how those involved were shocked, and taken back by what happened. It just amazes me sometimes of how much people don't think when they are talking... but I just always felt when my time comes I will be ready. Then came my moment. I went to this church activity that I am now one of the leaders over, and i was talking with one of the other leaders and found that another lady who we would be working with, who wasn't there that night, is another mom in our ward who has, I believe an eight year old daughter with DS (not positive if that is the correct age). We were talking about how I would probably be bringing my kids to the meeting as we have the meetings in the afternoon and my husband would still be at work, and she was like oh no worries.. so and so brings her daughter with her and you know how that is she is so behind that its like she is a 4 or 5yr old..... There it was, I seriously felt my body go numb... I think my face froze in this look and all I could do was stand there. In my head right now I'm yelling at this lady saying are you kidding me???? Climb out of your little shell and join the real world. No I don't know what it's like and I'm sure the lady and her daughter that you are talking about don't know what you are saying either. All I know is that i have a little 2 almost 3yr old son, who loves to get into trouble. Loves to do exactly what you tell him not to do. Loves to bug his older sister so much until she screams and goes crazy, and then he laughs. No he may not be totally walking but he does do it, all the time, all by himself. And though he cannot fully communicate with me he knows every single word I say to him and he understands it perfectly. He is a child just like any other 2 almost 3yr old child, and for you to think any less of him and his abilities because he has DS really shows how much you don't know.... yep that is what I wanted to say, yell, scream what have you, but I froze. And that night I was stuck. I was stuck running through my head what this person had said, and my reaction.... and in doing that I was taken back. Back to the moment when they said "We think your son has signs of Down Syndrome." Those feelings of anger, of sadness of asking why me. That total black cloud, and I was in it for that night and into the next morning... stuck for whatever reason, until finally as I was getting ready in the morning, i hear this sweet voice say "mom" and i look down and there is this perfect little boy, with his baby sisters jean skirt on his head, like a sailors hat. And I laughed and thought who cares. Who really cares... I know my little man, and I know the sky is the limit when it comes to him wanting to do anything, just like it is for his older sister, and younger sister. There is no difference. That is how I see it, and there are truly no words to describe how amazing that view is. I hope to post some more recent photos of the crew next time.. but back to the crazy.

1 comment:

  1. You need to post photos! I MUST see little Jack Beiber:) Jack and Jane are very much alike, especially in the area of teasing their older sisters. Too funny. And I can't believe Marley is moving all over the place...crazy! I'm sure Elle is loving her missing teeth. Ella can't wait to lose teeth although I'm fine with her keeping her baby teeth for several more years. Sorry you had to go through that situation. But like you said, it doesn't matter what others think. You know your son and how perfect he is and how he's just like his cousin who's his exact same age (thanks Jack for helping me realize Jane isn't a devil but a normal 2 yr old). Post photos soon!!!