Tuesday, April 27, 2010

We got some news!

Finally!!! We finally got a call from the cardiologist, actually it happened around the same time I went out and got the mail, which contained a letter from the sleep study doctor, showing the results and her summary of the study. But I spoke with the our Cardiologist, Dr. Judd, and she said that the sleep study looked really good but that his oxygen levels were not as high as they need to be. He stayed around 90-92% which was an improvement but Dr. Judd said they needed to be up more around 94%.... so we will be moving forward with just closing the PDA (surgery that requires just going up through a vein to repair) and then after the surgery is over checking the pressure levels to see if we will need to go in as well and close the VSD (which would be the open heart surgery).
This to me is good news, his sleep study was a huge relief and it was such a good feeling to see how much just getting his tonsils and adenoids out helped... in the doctors words we went from "This was a very abnormal sleep study, which showed severe sleep obstruction" to "This was a very good sleep study..."
The one down side is that because Dr. Judd wants his oxygen levels to be up more, we had to start him on oxygen at night time. so he has to have a tube thing going up his nose a little-which he totally hates- the whole night..... we had a O2 monitor on him last night that showed his levels stayed at 97-98% the whole night, which is good and the doctor said that once he gets a little stronger and his airways get used to opening so well the he would not need the O2 anymore... The surgery should be within the next 1-2 weeks so that is why we started him right away on the O2..... I'm hoping to be on it for about a month but we will have to see with surgery what happens... It was hard getting him all rigged up with the tube and everything, I felt like a nurse for a while, but once on and he calmed down he slept through the whole night... He is such a little trooper..... so for now we have a plan, I should be getting a call today on the exact date of the surgery, but at least we have the results and can move forward..... Finally!!
Now for some pictures:


Here is our Soccer girl before her first game.... we have soccer shorts for her but she refused to wear them due to the lack of the color pink... they are black and white.... so we had to settle for blue jean shorts?? She has black and pink soccer shoes and her socks of course are pink as well... Oh the things you have to do for a little princess...



This was at the 2nd Soccer game and as you can see we were successful in getting her soccer shorts on... you can't see it but what we had to do was use a marker and color the 2 white lines on the bottom of the shorts, one is purple the other pink, but hey it got her to wear them : ) The picture of her back is showing you the patches they get after a game. The coach will give them a soccer ball patch just for showing up, and then they get a special patch for doing something during the game, like good defense, falling down and getting up without crying, team player etc.... Elle loves the patches and I thought it was a really cool idea..

Here are our 2 munchkins at halftime.... Elle relaxing Jack loving sitting by himself in a big chair ; )

This is Jack the morning after his sleep study.. and he was supposed to sleep like "normal" with all those things on his face that had wires connected to each of them????
what you don't see are the 3 that were on his chin, the 2 behind his ears, the 2 on the back of his head, the four on his legs and the 2 on his back... oh and he had a tube across his face to measure his CO2 levels and then around midnight they added one more to give him more O2.... That would be soooo relaxing to sleep with ; )






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